Run to the Sun Relay is an overnight, long-distance relay benefiting Beyond Batten Disease Foundation. Join hundreds of advocates as they run from Enchanted Rock State Park to Austin, and then stand with us at sunrise while we celebrate the strength and determination of those impacted by this devastating disease and help us envision a world without juvenile Batten disease. How far would you go to impact the lives of the children affected by Batten disease?

 

OUR SPONSORS

Drake & Kristin Fason

John & Kristen Nelson

Batten disease takes away childhood, then takes away the child. It is difficult to imagine a worse fate for a child, but with your support there is hope. Join us in our mission to find a cure. For many families, we are in a race against time.

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The mission of Beyond Batten Disease Foundation is to eradicate Batten disease. We seek to accomplish that mission in two ways: 1. Raise awareness and money to accelerate research to find a cure for Batten Disease. 2. Develop an easy and inexpensive blood test to detect the gene mutations for Batten Disease, and hundreds of other rare conditions like it that claim the lives of thousands of children each year. MORE >>