Run to the Sun Relay is an overnight, long-distance relay starting at Enchanted Rock State Park. Stand with us at sunrise while we celebrate the strength and determination of those impacted by Batten Disease and provide them with hope for the future. Start a team today!

It is difficult to imagine a worse fate for a child, but with your support there is hope. Join us in our mission to find a cure. For many families, this is truly a race against time.

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The mission of the Foundation is to eradicate Batten Disease.
It seeks to accomplish that in two ways: 1. Raise awareness and money to accelerate research to find a cure for Batten Disease. 2. Develop an easy and inexpensive blood test to detect the gene mutations for Batten Disease, and hundreds of other rare conditions like it that claim the lives of thousands of children each year. Learn more...